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"Hurt,http://lxo.cn/news/html/?3711.html, I hurt! Grandparents, why do not you help me!" The operating room of a man named Wang child because the pain of bone marrow aspiration howl, grandparents standing outside the ward,http://www.0573apple.com/home.php?mod=space&uid=14734,moncler outlet, his fists, red-eyes, but could do nothing.

Four years ago, this was abandoned by her mother, two years old child suffering from a strange disease, increasingly swollen belly. Diagnosed by a doctor, suffering from incurable diseases, one of the world's "Gaucher disease."

Since then, the original is not a wealthy family, for children, debt,giubbotti woolrich, began the long road doctor.

Difficult doctor

1-year-old pregnant woman was abnormal belly like

In a small room, Shijingshan, lived from Iron City, Heilongjiang to Beijing to review the body of a small vibration and grandparents.

Recently,tiffany gioielli, the reporter came to their rented house. It is a small vibration grandparents who introduced a year and a half, when a small vibration diarrhea than people there, gradually, his growing belly,woolrich sito ufficiale, but also particularly hard, like a pregnant woman, like a few months pregnant .

With his grandfather was removed in various hospitals in Heilongjiang Province, the doctor has never been able to confirm the diagnosis. In July 2007, a small vibration people still less than 2 years old, my grandfather borrowed more than 30,000 yuan, the doctor took him to Beijing.

Union Hospital, doctors saw the child, just quietly wrote in the medical records, "Gaucher" word, then asked Grandpa: "?. You brought this disease much money, spend a lot of money."

Grandpa do not understand anything,parajumpers, just keep thanks, he felt able to diagnose,woolrich prezzi, and grandson saved there.

But he did not know, Gaucher disease is one of the world's diseases. After learning the truth, Grandpa "splash" kneel in the doctor's office, his arm grandson, broke down in tears.

The lifetime of hardship for the elderly,woolrich parka,http://www.nudistgallerie.com, for the first time to understand the meaning of the "dead end" of the word.

Although there are many diseases that free drug-ridden

A chance, grandpa that China's World Health Foundation for Gaucher patients provide a therapeutic drug free.

Although no cure, but allows people to maintain a little bit small vibration healthy state. He quickly came to the door with a small vibrating people go, Arranging and other drugs. Two months later, people started small vibration therapy for years.

With drug treatment, a small vibration human stomach shrink back, may look like a normal child. Grandma knows only his body, there are many problems. He osteoporosis, are particularly vulnerable to fracture, and therefore must always live to see him. His nervous system affected by a little, have some unusual eye.

Although the drug is resolved, but must be taken once every three months, Beijing medicine,nike air max pas cher,http://zkaonline.com/wx/thread-117328-1-1.html, small vibration person physical examination every six months,http://www.273m.com/home.php?mod=space&uid=45460, six months will need to cost nearly a million, let the family overwhelmed.

More difficult experience

Abandoned by his mother when young grandma and grandpa

Small vibration are not enjoyed a maternal child six months old when his mother suddenly disappeared, 1 year old, my mother reappeared,piumino moncler, but only to and dad divorce.

Dad has been working in the field, although close to home, but in order to save travel expenses back and forth, has not been home for many years. Small vibration people, my father is an invisible "something", only photos,spaccio woolrich, only sound, but never put himself high above his head in her arms.

In order to give people a small vibration treatment, the family has liabilities of more than 130,000 yuan. Grandpa has a special book to remember all of the payments. "I do not know how to continue opening to borrow money,http://51dy8.com/forum.php?mod=viewthread&tid=11632, this is not a date not just send us the same thing."

Future wish

Tang and self afford school

Today,chaussures jordan pas cher, a small vibration school age who is coming,http://qqdxs.com/home.php?mod=space&uid=313899, yet very ill, the family had no money, so he could only sit home day after day in the yard, listening to the sound of laughing children wall, listening to the far at the school came the reading voice. "I do not like the other kids, I can not read." Small vibration of people head down, the sound lifeless.

But he was serious, head wagging her own grandmother taught him Tang poem: "goose goose, crooked to Tiange white hair floating green water, Anthurium dial Shiba.."

Because of some complications, the tongue is not a small vibration flexible articulation problems, almost never accurate pronunciation. But he is another one carrying a first, without stopping to mean.

Small vibration biggest wish is that ordinary children,http://iboostcompany.com/template1/forum.php?mod=viewthread&tid=200000, walked into the school literacy.

Link

Gaucher disease is a genetic disease mutation, can cause pain, fatigue, jaundice, bone damage, anemia and even death. China now has more than 90 personal illness, did not completely cure the condition and precedent.

If you are willing to love and dedication that has helped more than 130,000 yuan of household debt,louboutin femme, please contact us: 58,635,863.

Text / reporter Xu day